Cancer and dementia
Find out more about supporting someone who has cancer and dementia, including how to get help and support.
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Each year, about 363,000 people in the UK are diagnosed with cancer. And about 850,000 people in the UK are living with dementia. Many people with dementia are also living with other health conditions, including cancer.
Many people with dementia are cared for at home by a family member or friend. In the UK, there are about 670,000 carers of people with dementia.
If you care for someone who has both cancer and dementia, it can be very difficult for you and the person you care for.
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Dementia is a word used to describe a set of symptoms. There are several types of dementia, so each person affected may have different symptoms. Alzheimer’s disease is the most common type of dementia.
Dementia is caused by damage to the brain. This damage is mainly from Alzheimer’s disease or strokes (vascular dementia). Symptoms will depend on what has caused the damage and what part of the brain is affected.
Symptoms can include:
- problems thinking clearly
- finding it hard to solve simple problems
- not remembering or using the right words
- being confused or disoriented
- changes to behaviour or personality.
Dementia is usually thought of in three different stages - early, middle and late. These stages are a guide to how dementia might develop over time. But dementia is different for each person and the stage will depend on different factors, including:
- the type of dementia
- the person’s general health
- the support available
- whether the person is having treatment for dementia.
Some people may not notice symptoms at first. Symptoms may come and go, while others may get worse over time (progressive). As the dementia moves into a later stage, someone with dementia may need help with everyday activities.
Sometimes the stages of dementia overlap. This may mean they need help with one type of task or activity, but can manage others on their own.
Some types of behaviour can be both challenging and distressing.
The treatment depends on:
- where in the body the cancer started
- the size of the cancer
- whether the cancer has spread to other parts of the body
- the persons general health
- any other conditions they have, such as dementia.
The doctor will consider all these things when planning treatment. They can affect how well certain cancer treatments work or whether someone is well enough to have them.
The cancer treatment offered to the person you’re caring for will depend on their individual situation, but also on the stage of the dementia. Specialist doctors and nurses can talk to you about what cancer treatments might help in their situation.
We have more information about treating cancer when someone has dementia.
If someone has dementia, it is likely their ability to make decisions (mental capacity) will be affected in the future. There may be a time when they are no longer able to make decisions or communicate easily.
The person you care for may already have an idea of how they would like to be treated at the end of their life. If they are able to plan ahead, it can help you and the health professionals caring for them.
There are different ways the person you care for can plan ahead. This is sometimes known as advance care planning. Usually, this is an opportunity for them to make decisions about:
Wishes and preferences for care (advance statements)
The person you care for can talk to you, or to someone else they trust, about how they would like to be cared for. They can also write down their wishes and preferences and share them with family members and healthcare professionals. This is called an advance statement.
Advance decisions and directives to refuse treatment
This document is called an advance decision to refuse treatment in England and Wales or Northern Ireland. It is called an advance directive in Scotland. It is a decision about treatments the person you care for does not want to have. For example, they may decide that if their breathing stops, they do not want doctors to try to bring them back to life (resuscitate them). Or that if they are very ill and have an infection, they do not want to be given antibiotics.
If the person you care for refuses a treatment, they will still receive good care. They will still have medicines to help manage any symptoms they may have.
Power of attorney
The person you care for can give one or more other people power of attorney. This is called a lasting power of attorney (LPA) in England and Wales, a continuing power of attorney (PoA) in Scotland, and an enduring power of attorney in Northern Ireland.
This is the legal power to manage their affairs and it can be temporary or permanent. A temporary power of attorney is only for a set time. For example, it could be while the person is staying in a care home. It stops when the set time ends or if the person decides to cancel it.
A permanent power of attorney may be used if the person you care for thinks they may lose the ability to make decisions for themselves. When someone is given a permanent power of attorney, they can make decisions about another person’s property and finances or health and welfare.
Although someone can create their own power of attorney, it can help to speak to a solicitor. They will make sure it meets all the requirements of the law. If you do not have a solicitor, you can find one by contacting the Law Society.
Dementia UK has a leaflet on lasting power of attorney which you may find useful.
If the person you care for identifies as LGBT, this may have an impact on the treatment and care they would like to receive. An organisation called Compassion in Dying has written a guide called Your treatment and care: Planning ahead for the LGBT community that may be helpful.
It can be helpful for the person you care for to think ahead and make some decisions about where they want to be cared for in the future.
They may be able to stay at home with help and support. Or they can be cared for in a hospice or nursing home.
We have more information about short-term and long-term cancer and dementia care options.
The person you care for may have symptoms or side effects caused by cancer or cancer treatment. Some of these may be similar to the symptoms or side effects caused by dementia.
We have more information about symptoms and side effects in someone with cancer and dementia.
There are lots of everyday things you can do to help someone living with cancer and dementia.
You do not have to cope with caring for someone on your own. Building a support network of friends, family or neighbours can make a big difference.
There are also community health and social care professionals who can support you. The type and amount of support you get will depend on where you live and how the services are organised in your area.
If you need support and services to help you care for someone in their home, you can ask the GP and district nurses to make referrals.
If the person you care for is coming home from a stay in hospital, any help and services they need can be set up so that they start when the person gets home. The hospital staff usually does this, with the help of a social worker.
Admiral Nurses provide the specialist dementia support that families need. When things get challenging or difficult, Admiral Nurses work alongside people with dementia and their families to offer:
- one-to-one support
- expert guidance
- practical solutions to help face dementia with more confidence and less fear.
Most Admiral Nurses work in the community for the NHS, but some work in care homes, hospitals or hospices.
To find out if there is an Admiral Nurse in your local area:
- call Dementia UK’s Admiral Nurse Dementia Helpline on 0800 888 6678
- email firstname.lastname@example.org
You can find out more about Admiral nurses from Dementia UK.
For some people, it may not be possible to control the cancer any longer. Or they may not be well enough to have treatment. If this happens, their cancer doctor or nurse will make sure they have treatments to manage any symptoms they may have. This is called palliative care.
Some people may already be having palliative care when they are diagnosed with cancer and dementia. Others may be referred to a palliative care team at a later stage. The person you care for can be referred for palliative care by their cancer doctor, GP or specialist nurse.
Community specialist palliative care team
Palliative care teams include specialist nurses and doctors. These teams specialise in controlling pain and symptoms, as well as offering emotional support. They are sometimes based in hospices and can visit people who are being cared for at home.
Community specialist palliative care nurses will work closely with the person’s GP, district nurse and other hospital services. They will tell you more about their services, how to contact them and when they are available.
End of life
Hearing that the person you care for may be near the end of their life can be very difficult and distressing. You might experience strong emotions. You may need some time on your own. Or you might want to talk things through with your partner, a relative or a close friend.
Some people find it easier to talk to someone outside their family. If you think this would be helpful, you can talk to your doctor. They may be able to refer you to a counsellor. Or you can contact the British Association of Counselling and Psychotherapy. They have information about counsellors in different areas and charities that may offer free or discounted counselling.
We have more information about caring for someone who is dying.
Looking after someone with cancer and dementia can be both rewarding and challenging. Depending on the stage of their illness, they may need lots of help with everyday activities. This could include washing, dressing and cooking.
It can be hard to know if you are getting all the help that is available and if you are supporting the person you care for in the right way.
We also have more practical information and advice about:
Finding out the person you care for has both cancer and dementia can be very upsetting. It is common to feel shocked, frightened or angry about their situation.
Talking to other people about how you feel can be helpful. Some people find it hard to talk to close family and friends. You may like to talk to someone else. Ask your GP to refer you to a counsellor or support group.
If you need more support, you can:
- can call the Macmillan support line on 0800 808 00 00
- call Dementia UK’s Admiral Nurse Dementia Helpline on 0800 888 6678
- get information and advice from Carers UK or Carers Trust.
You may also find online communities helpful. These are online groups where other carers share their feelings and experiences. There are a few online communities where you can talk to other people going through the same thing, such as:
Financial help and benefits
Cancer often means extra costs for you and the person you care for. This can include paying for travel to hospital, or increased food or heating bills. If you have to give up work or reduce your hours, your income may drop.
You and the person you care for may be eligible for benefits. A range of benefits are available for full-time carers and carers who are still working.
We have more information about getting financial help. You can call our welfare rights advisers on 0808 808 00 00 to find out more about which benefits you may be able to get.
Dementia UK’s Admiral Nurses can also give financial advice to people affected by dementia. Call them on 0800 888 6678.
Working and caring
If you are caring for someone, you may have to give up work or work part-time so you can be at home more. This may be a difficult time financially.
Finding a balance between work and caring can be difficult, but it is not impossible.
Below is a sample of the sources used in our bowel cancer information. If you would like more information about the sources we use, please contact us at email@example.com
Alzheimer’s Society. Dementia 2015: Aiming higher to transform lives. 2015.
Gosney et al. Dementia and Cancer: A review of current literature and practices. 2013.
The Dementia Engagement and Empowerment Project (DEEP) Guide: Writing dementia-friendly information. 2013.
This information has been written, revised and edited by Macmillan Cancer Support’s Cancer Information Development team. It has been reviewed by expert medical and health professionals and people living with cancer. It has been approved by Chief Medical Editor, Professor Tim Iveson, Consultant Medical Oncologist.
Our cancer information has been awarded the PIF TICK. Created by the Patient Information Forum, this quality mark shows we meet PIF’s 10 criteria for trustworthy health information.