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Why should I share my story?
We want to help as many people as possible during their cancer experience – patients, carers, families and communities. A great way of doing this is by raising awareness of what we do in national newspapers, magazines, on TV and in the local press we can reach more people.
We rely on personal stories to help us do this as they engage the reader and bring the story to life. For example, if we provide research for a newspaper showing that cancer can affect people financially, it has more of an impact if it’s accompanied by an emotive quote or story of someone who has been directly affected.
Your story can inspire people to take action, maybe encouraging those who see it to get help if they are worried they have the symptoms of cancer, or inspiring them to donate or fundraise for us. Some people who’ve shared their story find it a really cathartic and helpful experience. It makes them feel good to give something back. -
What would I have to do?
If you are interested in sharing your story, all you need to do is send us a summary of your story along with your name, contact details and a recent photo to storiesteam@macmillan.org.uk. A member of the friendly stories team will be in touch if there’s an opportunity we think you’d be perfect for.
If you have a story that we think will be of interest to the media, a member of the press team will get in touch to explain the process of sharing your story and answer any questions you might have. They will ask you a few questions to find out more about your story and may ask you to send over some more recent photos.
If you want to go ahead, the press officer will approach journalists with your story and try to secure you a slot in a magazine, newspaper or on TV. If you are happy to appear in that media, with your permission we’ll pass on your contact details to the journalist who will arrange to interview you, usually by telephone. We regret that we won’t be able to respond to everyone who emails us but really appreciate you getting in touch. -
Where would my story appear?
We use stories throughout our work, from fundraising appeals to cancer information materials to social media posts. We will always let you know how we’d like to share your story, and we will only do so if you are totally comfortable.
We also work with a range of media from broadcasters like the BBC, national newspapers like The Times, Daily Mail and Guardian and women’s magazines like Woman’s Own and Good Housekeeping.
They all have different requirements for their stories so we would approach those which we think are most appropriate, depending on your story. You will always have our full support when there’s an opportunity to share your story with the media. -
Do I have to be identified and pictured?
There are some opportunities where your story can be anonymised, but it’s always much more powerful and engaging when people can see the storyteller behind the experience.
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Will I have a say over what's written?
In any of Macmillan’s work that shared your story, we will always work with you to make sure that you feel your story is being represented in an authentic and appropriate way.
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What happens once I’ve shared my story?
We’ll share with you any content that your story appears in and will let you know what impact it’s had. If you’re happy and give us your consent, we’ll store your contact details and story in our database, and will be in touch with future opportunities that might be relevant to you.
If your story was shared in the media, the journalist should tell you when your story will appear so you can get a copy and tell all your friends. We’ll also try our best to get this for you. We will also ask the journalists to include information about Macmillan Cancer Support’s campaigns and services and you can feel proud that you’ve helped deliver our message.
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What is lymphoma?
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What is lymphoma?
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Are there different types of lymphoma?
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What is cisplatin?
About cisplatin
Cisplatin is a chemotherapy drug used to treat:
It may also be used to treat other cancers.
It is best to read this information with our general information about chemotherapy and the type of cancer you have.
Macmillan Volunteer Awards 2019 Playlist on YouTube
TEST TEST TEST TEST TEST TEST“The beauty about the course was that although I was producing a story which involved much thought and reflection, it was never onerous as there was not any feeling of pressure to complete.”– Digital storyteller
Consent
Your doctor will talk to you about this treatment and its possible side effects before you agree (consent) to have treatment.
How cisplatin is given
You will be given cisplatin in a chemotherapy day unit or during a stay in hospital. A chemotherapy nurse will give it to you. Cisplatin can be given in combination with other cancer drugs or with radiotherapy.
During treatment you usually see a cancer doctor, a chemotherapy nurse or a specialist nurse, and a specialist pharmacist. This is who we mean when we mention doctor, nurse or pharmacist in this information.
Your nurse usually gives you anti-sickness (anti-emetic) drugs before the chemotherapy.
How is it done
Cisplatin is given into a vein (intravenously). The nurse will put:
- a short thin tube into a vein in your arm or hand (cannula)
- a fine tube under the skin of your chest and into a vein close by (central line)
- a fine tube into a vein in your arm and through into a vein in your chest (PICC line).
Cisplatin can affect the kidneys. You will be given extra fluids through the drip before and after the cisplatin. You may also have a drug called mannitol. The fluids and mannitol can help prevent kidney damage.
Fluids
Your nurse will explain how long it will take to have the extra fluids. They will also give you advice about how much fluid to drink for the next 24 hours.
Drip infusion
Your nurse will give the cisplatin as a drip (infusion) that is attached to your cannula or line. They will usually put the drip through a pump. This will give you the treatment over a set time. "It was really helpful to hear others’ stories. Initially they provided a guide but also the messages made me realise that everyone has a story worth listening to (including me."
Ways Macmillan can support you
Searching for the right information can be really confusing. We have lots of services to help people living with cancer and people who have had cancer. We also have lots of information and services to support the loved ones of people with cancer.
If you want to be put in the right direction or simply need to talk to someone, we recommend to call us on our Macmillan Support Line. We can point you in the right direction, provide you with the information you need and offer you advice or a listening ear. [Call us] You can also browse a list of some of our services:|
Boots Macmillan Beauty Advisors are trained to give free, face-to-face advice to help you cope with the visible side effects of cancer treatment. |
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Boots Macmillan information pharmacists give local support to people affected by cancer. Find out more about what they do and locate your nearest store. |
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Macmillan produces a range of information in languages other than English. We also offer an interpreter service for our Macmillan Support Line. |
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Our Cancer information nurse specialists are dedicated cancer nurses available to talk to on our Macmillan Cancer Support Line. |
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If you are living with cancer and your energy bills increase, find out how we can help with access to energy schemes and grants. |
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Financial issues can cause worry if you become ill. Find out more about how Macmillan can help you with your finances. |
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Macmillan information and support centres support people affected by cancer. They are free to use and we have centres across the UK. |
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We produce information in different languages and formats to suit different needs; PDFs, ebooks, audio, easy reading and British Sign Language. |
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If you need to talk about your cancer experience, there are more than 900 local support groups in the UK. |
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Macmillan Support Line - phone |
You can phone the Macmillan Support Line. It offers confidential support to people living with cancer and their loved ones. If you need to talk, we’ll listen. |
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Macmillan Support Line - web chat |
You can also use our webchat if you would prefer to chat online with the Macmillan Support Line. |
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Macmillan Grants are small, one-off means-tested payments to help with the extra costs that living with cancer can bring. |
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Macmillan Online Community is a free online place for people living with or who are affected by cancer to chat about the issues affecting them. |
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Our free Telephone Buddy service is here for you. We'll match you with someone who understands what you're going through, and they'll give you a weekly call. |
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Our Macmillan Well-Being Coaches are here to help you if you have or have had cancer. They offer free, remote coaching to people who want to work towards making a positive change in their life. |
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SafeFit is a free remote trial for anyone in the UK with suspicion of, or confirmed diagnosis of, cancer. We put you in contact with a cancer exercise specialist who will help you during the coronavirus (COVID-19) crisis. |
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We know that money is a big and often difficult thing to talk about when you’re living with cancer. Find out more about how you can access benefits which you’re entitled to. |
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The Work Support Service offers advice to people who are employed or self-employed and are affected by cancer. |
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Ongoing information and support via email, from day one. Helping you cope with the health, money and emotional impacts of cancer. |
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This is a list of carefully selected services not provided by Macmillan, to help you find other forms of support during this difficult time. |
| Welfare rights advice | The Work Support Service offers advice to people who are employed or self-employed and are affected by cancer. |
| Ongoing Email support | This is a list of carefully selected services not provided by Macmillan, to help you find other forms of support during this difficult time. |
| Apps for people with cancer | This is a list of carefully selected services not provided by Macmillan, to help you find other forms of support during this difficult time. |
| Macmillan Support Line - web chat | This is a list of carefully selected services not provided by Macmillan, to help you find other forms of support during this difficult time. |
| Macmillan Support Line - web chat | This is a list of carefully selected services not provided by Macmillan, to help you find other forms of support during this difficult time. |
| Macmillan Support Line - web chat | This is a list of carefully selected services not provided by Macmillan, to help you find other forms of support during this difficult time. |
| Macmillan Support Line - web chat | This is a list of carefully selected services not provided by Macmillan, to help you find other forms of support during this difficult time. |
| Macmillan Support Line - web chat | This is a list of carefully selected services not provided by Macmillan, to help you find other forms of support during this difficult time. |
| Boots Macmillan Beauty Advisers | Boots Macmillan Beauty Advisors are trained to give free, face-to-face advice to help you cope with the visible side effects of cancer treatment. |
| Macmillan Support Line - web chat | This is a list of carefully selected services not provided by Macmillan, to help you find other forms of support during this difficult time. |
| Welfare rights advice | This is a list of carefully selected services not provided by Macmillan, to help you find other forms of support during this difficult time. |
| White blood cells (WBC) | 4.0-11.0 x 109/l |
| Neutrophils | 2.0-7.5 x 109/l |
| Lymphocytes | 1.5-4.5 x 109/l |
Side effects
Effects on the blood stream
Blood is made up of blood cells, which float in a liquid called plasma. Each type of blood cell has an important role in the body.
Image: Cancer cells in blood stream
Effects on the kidneys
Cisplatin can affect how your kidneys work. You will have blood tests before and during treatment to check this.
Before and after each treatment, your nurses will give you extra fluids through a drip. This is to protect your kidneys. It is also important to drink at least 2 litres (3½ pints) of fluids each day.
If you pass less urine than usual, tell your nurse.
Blood tests
What is a blood test?
A phlebotomist, nurse or doctor will take a sample of blood, usually from a vein in your arm. This will then be tested in a laboratory. Test adding document. Test test test.
In this video: This video is an animation of how blood cells are made
Full blood count (FBC)
Blood is made up of blood cells, which float in a liquid called plasma. Each type of blood cell has an important role in the body.
A full blood count (FBC) test measures the level of these cells:
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Red blood cells
Red blood cells contain haemoglobin (Hb), which carries oxygen from your lungs to all the cells in your body.
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Platelets
Platelets are very small cells that help blood to clot, and prevent bleeding and bruising.
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White blood cells
White blood cells fight and prevent infection. There are several types of white blood cell. The two most important types are neutrophils and lymphocytes.
Measuring your full blood count
The levels of these cells in your blood can be measured with a blood test called a full blood count (FBC). The figures below are a guide to the levels usually found in a healthy person.
These numbers can vary from hospital to hospital. Your doctor or nurse will tell you which levels they use. They also vary slightly between people from different ethnic backgrounds.
The numbers might look complicated when they are written down, but doctors and nurses often use them in a simple way. For example, you may hear them saying things like, ‘your haemoglobin is 140’ or ‘your neutrophils are 4’.
If you would like to know more you can always ask your medical team to explain in more detail.
| Type of cell | Levels found in a healthy person |
| Red blood cells – measured in haemoglobin (Hb) levels | 130-180g/l (men) 115-165g/l (women) |
| Platelets | 150-400 x 109/l |
| White blood cells (WBC) | 4.0-11.0 x 109/l |
| Neutrophils | 2.0-7.5 x 109/l |
| Lymphocytes | 1.5-4.5 x 109/l |
Resources to help
You can download our Understanding kidney cancer leaflet [PDF].
Or click on the image below to download it.
Case study
"Sometimes you can relate to someone better when you talk to a stranger over the phone than you can to your loved ones. I called the Macmillan helpline. You could pick up a phone from the comfort of your home and speak to someone."
Ravinder, diagnosed with breast cancer 2013.
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